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Diagnosed with Chronic Lymphocytic Leukemia

I was diagnosed May 16 1019 with CLL and I am currently on Imbruvica.

I’ve known something was wrong with me but all the doctors blamed it on my back.

Relieved and shocked to receive a diagnosis of CLL

I told my wife I know something is wrong with me they just haven’t found it yet.

Having a diagnosis was a relief and shock.

I have a lot of fatigue and lack of strength.

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Comments

  • Susan Gonsalves moderator
    2 weeks ago

    This story happens too often. You have to trust your instincts and look for answers when you know something is wrong. Finally getting an answer does kind of give you relief (I was diagnosed 5 years ago with CML after doctors told me my fatigue and other symptoms were everything but the kitchen sink). Now that you know what you are up against, you can address it. I hope you improve day by day. Susan (www.blood-cancer.com team member)

  • Leslie
    3 weeks ago

    I was diagnosed in 2017 after looking at my blood test results for two years and wondering why the WBC was off for so long. My GP said it was nothing to worry about but I made an appointment with an oncologist. I was not surprised with the results. I have been watch and wait since then.

  • Yolanda Brunson-Sarrabo moderator
    3 weeks ago

    @leslie I’m so happy you inquired further and sought further direction. The problem is many people don’t catch these types of situations earlier on, and sometimes the GP doesn’t catch possible flags. I was fortunate that my GP was diligent in paying attention to a regular check-up lab, that clearly showed high protein levels. I hope things stay at watch wait with no need to react. Best!

  • Ronni Gordon moderator
    4 weeks ago

    Though it’s hard to get this diagnosis, it’s great that you knew your body well enough to follow up and get answers. I’ve been there myself. Rest up and keep us posted on how you’re doing! – Ronni, blood-cancer.com team member

  • Yolanda Brunson-Sarrabo moderator
    1 month ago

    I’m very sorry that you were not diagnosed earlier. I’m sure the words leukemia were far from your mind. It holds true to trust your body when you feel something may not be right. Wishing you the very best!

  • rcb5573 author
    1 month ago

    Thank you.

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