Improving Quality of Life for People With Relapsed Refractory Multiple Myeloma

Relapsed refractory multiple myeloma (RRMM) is a challenging condition. Living with it can feel overwhelming. However, there are ways to improve your quality of life. By focusing on palliative care, mental health, and preparation, you can make this cancer journey a little easier.

The importance of palliative care

Palliative care is for people with serious health conditions, like relapsed refractory multiple myeloma. Its focus is managing symptoms and providing support throughout a person’s health journey.^1-3

Palliative care is connected to – but not the same as – hospice care. A person receiving hospice care often receives palliative care, but palliative care is not hospice. Hospice is typically used at the end of life when a person is no longer receiving treatment. On the other hand, palliative care can be used anytime during a serious illness. Active treatment and palliative care can occur at the same time.^1,2

Because palliative care has scary associations, doctors and people with serious health conditions often put off talking about it. This can lead to delays in starting care and reduced quality of life. Spreading awareness of what palliative care is and the benefits it brings may help change the way it is used in the future.^1,2

What does palliative care include?

Palliative care can include:^1-3

• Help with physical symptoms like pain or nausea
• Emotional, mental, and spiritual support to help with coping
• Aid to caregivers
• Answers to questions and concerns about:
  • Finances
  • Insurance
  • Employment

Your palliative care team may include doctors, nurses, and social workers. They will focus on easing your symptoms and making everyday tasks easier.^1,2

If you are in pain, tell your doctor. Pain management is a key part of palliative care. Your doctor can recommend medicines, physical therapy, or relaxation techniques that may help.^1,2

Palliative care also helps with emotional challenges. It is totally normal to feel stressed or anxious when living with RRMM. A counselor or social worker can help you find ways to cope.^1,2

Taking care of mental health during a cancer journey

Mental health is just as important as physical health. Cancer can bring emotional ups and downs. You may feel sad, angry, or scared. These feelings are totally normal.⁴

Talk to someone you trust about how you feel. This could be a family member, friend, or therapist. Support groups can also help. In these groups, you can connect with others who understand what you are going through.

Some people also find comfort in mindfulness or meditation. These practices can reduce stress and help you stay in the moment.

If your feelings of sadness or anxiety are strong, let your doctor know. There are treatments available, including therapy or medicine.

Preparing for the long treatment journey

Treatment for relapsed refractory multiple myeloma can be long and demanding. But preparing yourself can make it easier to manage. Start by learning as much as you can about your treatment plan. Ask your doctor questions so you know what to expect. Understanding your care can help you feel more in control.

Plan for rest during treatment. Fatigue is common with cancer and its treatments. Pace yourself. Prioritize activities that are most important to you.^3,5

However, stay as active as you can. Light exercise, such as walking, can boost your energy and mood. Eating a balanced diet can also help you feel stronger.

Do not hesitate to ask for help. Friends and family may be happy to assist you with meals, chores, or getting to and from medical appointments.

Be prepared for new symptoms

New symptoms may appear during your journey with RRMM. These symptoms could come from the cancer itself or from RRMM treatments. They can include:^3,5

• Very low level of blood cells and platelets (myelosuppression)
• Bone pain
• Fatigue
• Infections
• Nerve damage that can cause numbness in various parts of the body, like the feet (peripheral neuropathy)

Pay close attention to how you feel. Keep a journal of any changes or symptoms, and share it with your doctor. Early reporting can help manage problems before they worsen. Your care team can provide medications or other strategies to manage these issues.⁵

Talk with your doctor

Living with RRMM is not easy. But there are ways to live a happier and healthier life with the condition. Focus on managing symptoms, caring for your mental health, and preparing for the challenges ahead.⁵

Ask your doctor about warning signs that need immediate attention. Knowing what to watch for can help you feel more prepared.⁵