Since DX in 2024, I continue to swing from denial that I have cancer to OMG, I have cancer. I CAN'T (mental block) share my struggles with anyone in my social world because I also downplay my own issues. I don't share (with husband or kids) that I constantly am in pain, afraid to take any medication outside of my TKI, can't sleep for a full 2 hours, let alone the entire night, and sometime just too physically and mentally fogged and fatigued and not just being lazy. All the time, pushing through it all and thankful to not be worse off.
I feel like I am on a train that I cannot stop or slow down, where my CML is not really an issue. After all, "I won't die from CML" and "I don't look sick". I think hearing this has made me to downplay my own chronic issues.
Have you felt this way? How do deal with this? Better yet, what should I be doing for myself?