Was diagnosed in 2013 with MGUS which has progressed to smoldering myeloma (IgG Lambda). Am a healthcare professional and never thought "it" would ever happen to me as I was always healthy. No overt symptoms and fortunately, my genetic testing for the common genes is negative. However, I'm followed every two months with blood work and my last set of bloods didn't look so good.
I don't discuss with my family as I don't want to alarm them when there is nothing "happening". Am praying I stay smoldering and don't progress. Fortunately, so much has changed in the treatment of people smoldering (mainly trials) and many people with myeloma are living longer. Hard to not worry from one check up to another. Am so happy to join this group to become even more informed than I am. Thank you
Have you met another blood cancer patient?