Marcia's Story

By marcia

1 min read

After a terrible migraine and nausea, I went to the emergency room. After scans and blood work, I was diagnosed with polycythemia vera.

Actually, it was May 23, 2017... I'll never forget it.

My two sons live in Orlando, my daughter lives close but cannot accept it and will never discuss my situation and illness.

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Anthony Carrone Community Admin
Hey <inline-mention user-id="3649642" username="marcia"/> , I'm sure that date is unforgettable. I'm sorry that you are not able to communicate with your children about your illness. I know that conversation can be difficult on both sides. Please know we are here for you. Many people here have been through similar situations and really understand how you feel. You can always reach out to me if you need to chat or have any questions! Thanks for sharing your story - I'm sure you have helped others feel less alone. Sincerely, Anthony (Team Member)
Yolanda Brunson-Sarrabo Moderator & Contributor
Hi <inline-mention user-id="3649642" username="marcia"/> It can be so difficult facing situations like this, and once "that" anniversary approaches the ordeal doesn't leave us. I say all that to say, it does get better. It's a new walk and a new journey towards the future. You're still among your family and friends, so embracing your presence in the moment may be how you need to move forward. As this is difficult for you, your family hold onto the grief of what the future holds. You're not alone, I wish you the best as you move forward. As a survivor, we look forward to even more anniversaries yet to come.
hammosa Member
Hi Marcia, Welcome to the forum. Sorry to hear you children will not discuss your disease with you. If they discuss it then they have to accept it. To accept it is something our loved ones do not want to do. Given time they will come around. My 19 year old is also not wanting to talk about my cancer. I’m finding that each of my children are dealing with it in their own way. The best thing I did was get involved with Hospice, they provide counseling for my children. Sometimes they can talk about it with others but not with us. Best wishes, you are in my prayers 💚
1. Ann Harper Moderator & Contributor
 Thank you for sharing. I didn't know Hospice provides counseling. This is something I will keep in mind.
Ann Harper Moderator & Contributor
That must be tough. If you need to talk maybe you can find a support group close by or post here. Not everyone can handle news like this. Good luck to you.
Deb Wesloh Moderator & Contributor
I was also diagnosed with polycythemia vera in 2016. Would like to hear more about your PV journey and see if there's anything I can do to help.