Almost 3 years ago I was dx. with MDS/MPN, AIHA.This was after my first bone marrow biopsy. ( my G.P. had seen anemia on several visits. After being put on several meds to make and increase my red blood cells...with no success, another bone marrow with genetic testing was done. This time Overlapping MDS/MPN, RS, 5q, 20q. I am now dependent on 1-2 pints of RBCs about every 2-3 weeks. Weak and tired, blurry vision, acceleration of memory, comprehension...
Do you worry about relapse?