2 Treatments Finished. Both Times UMRD. Off All Meds

By Mickimauser11

1 min read

I was dx 2017 with high tumor burden Trisomy12 unmutated CD38 positive and hyperleukocytosis which can happen in chronic disease but rather happens in acute leukemias. I was included in the CLL13 study Ibrutinib Obinutuzumab and Venetoclax after 8 months I was UMRD and was off all meds for 30 months but at the end of 2020 I relapsed due to EBV and was treated with Obinutuzumab and Venetoclax I was UMRD since March 2021 after 6 months but continued on Venetoclax to get a deeper remission. I just had my checkup and I’m still UMRD tested in 1 Mio cell and I’m off all meds I have no other health issues so I only take L Thyroxine for my thyroid I will be 73 in 2 months. This was taken in November 2020

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Katelynn Bauer Moderator & Contributor
Hello! Thank you for sharing your story! We're so glad you're here with us. How is your week going? Warm wishes, Katelynn (Team Member)
Mickimauser11 Member
Hi Katelynn I’m off all meds doing fine my next checkup is end of May . Will see how my BCells are doing because they were affected by my treatment the healthy ones too. How are you? Best wishes Bärbel
1. Yolanda Brunson-Sarrabo Moderator & Contributor
 <inline-mention username="Mickimauser11" user-id="4328460"/> Congrats! Awesome, I hope everything else turns out great with those B cells. Best!
2. Katelynn Bauer Moderator & Contributor
 <inline-mention username="Mickimauser11" user-id="4328460"/> I'm so happy for you, congrats! That's so exciting! Please let us know how that goes. I'm doing very well thank you for asking. 😀
Dennis Golden Moderator
So good to get off the meds👍
Leya Elijah-Lyle Moderator & Contributor
<inline-mention username="Mickimauser11" user-id="4328460"/> Congratulations to you!!! I know it must feel good to be off the meds! You look wonderful!
1. Mickimauser11 Member
 Thank you all for your replies I m fine this was my second treatment but I feel a lot better than last time I got off meds Bärbel
Daniel Malito Moderator
<inline-mention username="Mickimauser11" user-id="4328460"/> Cancer is such an unpredictable rollercoaster, you never know what's going to come next. Glad to hear you are in remission again after such a long haul. Please let us know how its going and remember, there are many of us out there, you're not alone! Keep on keepin' on, DPM
Doreen Member
Mickimauser11, Thank you so much for sharing your incredible story. I'm glad to hear you are doing well. You are a true inspiration. All my best, Doreen (Team Member)
Dennis Golden Moderator
Not only is cancer an unpredictable rollercoaster ride - so are the many treatments - Go in one time and you are ok - Go back for the next and it can be a new experience. Ended up hospitalized after my first one. The second treatment was better as were the others as they kept increasing the potency of each treatments -- In end all was ok but mentally I kept waiting for "the next shoe to drop." Lots of after effects however that you learn to work with. Dennis(Blood-Cancer.com TEAM)

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