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What are the next steps after a mantle cell lymphoma diagnosis?

As a rare and often aggressive form of lymphoma, what are the next steps after diagnosis for patients diagnosed with mantle cell lymphoma?

Community Answers
  • hammosa
    6 months ago

    Hi Pamela,
    I am not sure if this is you diagnosis but it is mine. I can only tell you what I did but ultimately everyone will choose a different path. I was diagnosed with MCL in 2013. Because of all the research I have done, I decided I would not do anything unless it was just treatment to keep me comfortable.
    I cruised along 4.5 years with minimal symptoms. I traveled with my husband, friends and children as much as I was able while working as an RN at our local hospital. I have seen a lot working in the hospital and it became my goal to stay out of there.
    My cancer just started behaving in s more aggressive manner lately , requiring Radiation therapy, which knocked it back quite a bit. There again all out patient therapy. I am so grateful that I took the course I did and I have really lived my life to the fullest. I know myself and I know I would not of been able to go through all of the hyper cvad BMT and Rituxin maintainence therapy. I could not of dealt with the lack of control of staying in the hospital or the separation from my family.
    MCL does not do as well as some cancers in terms of remission, so for me it wasn’t worth it.Everyone has different life circumstances and they just have to decide if they are really able to put of the fight. Best wishes, I hope this was helpful💚

  • Yolanda Brunson-Sarrabo moderator
    6 months ago

    @hammosa You are so correct… everyone has a different go of dealing with their circumstance. I’m so happy you’re living your life to the fullest, despite the trials. Keep at it and best! 🙂

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