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wblair

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wblair's Status Updates

"Still having Chronic GBDH, will I ever get over this? "

  1. @wblair I think you are talking about GVHD? If not then please disregard, but if so, then it is something that you probably have to deal with for a while. It does have some bad side effects but it also comes and goes, so there are not so bad days as well. It gets better though, so hang in there. DPM

  2. Hey @wblair - I want to connect you with our advocate @ronnigordon. She may be a good person to talk to about GVHD. I will also reach out to some of our other community members that have experienced this as well. In the meantime, it's always best to let your doc know if you feel things are worsening. How have you been feeling lately? Best, Anthony

  3. I'm curious about what kind of GVHD @wblair is having. Definitely it needs to be discussed with a doctor so it can be managed.

  4. I have Chronic GVHD and biggest issue is can’t keep back straight. I am walking bent over it and skin on back is very hard.