Weight for It...
So I’ve always maintained a petite statute for a good part of my life. However, during my time with multiple myeloma, let’s just say I’ve seen things change a bit. My weight has dipped up and down for the past 5 years thanks to Revlimid, Dexamethasone, and Kyprolis. Whether noticing the beaver cheeks or other slight annoyances, this issue of weight going up and down has been interesting.
Cancer-related dental issues lead to weight loss
I had a few root canals a few years back (long story thanks to myeloma) and wouldn’t you guess it I had the worst side effect. I lost about 10-15 pounds and that wasn’t great as I was already small. Well, due to the side effect of the procedure and so forth, I was hit with lockjaw. I tell you, if it’s not one thing, it's another!! Anyway, due to the inflammation or whatever made my jaw lock. I could not open wide enough to eat. I was only really eating liquids. It was absolutely ridiculous and all while in treatment. My diet consisted of creamy mashed potatoes, smoothies, water, and I can’t even recall what else. But I know the Popeyes mashed potatoes were a big treat for me, as it was my version of steak. This went on for about 4 weeks until I finally regained movement.
Steroids lead to weight gain
Then with the steroids that were part of my unwanted cocktail, my weight brought me to numbers not seen before. Now, you may say, "Well, at least you were gaining weight, as so many people lose weight with their meds." I guess the thought of more meat on the bones seems better for tolerating treatment. Well, I’m here to say that is a myth and changes to weight up or down should not be taken lightly.
Nutritionist, where are you?
I’ve found that many questions on my walk with multiple myeloma consisted of me asking the question, and if the answer was not sufficient, then I would try to find the answer by other means. Anyone who knows me well, knows that I don’t like condescending folks, and I don’t like sass!
I recall early on seeking a nutritionist to combine with my treatment. I gathered that those I spoke with didn’t see this as an issue so they thought I didn’t need a nutritionist (Insert side-eye). I would ask and ask until I finally reached out to the nutritionist on my own, and I will tell you that the experience was not all that I thought it would be.
I was given a few sheets to read on getting vit C, folic acid... you know all those things generally needed for the body. I didn’t find the answers totally in tune with my situation. My weight was skyrocketing! I didn’t want to hear, "Oh it’s the medication." I wanted to say, “Um, okay but when do we become concerned”? As I continue to say in my posts, you really have to know when something is not right with your health, even more so when you add in myeloma or any health condition.
Our healthcare team should talk more about weight changes
If you haven’t thought much about weight and myeloma, well, it’s something we should consider talking about during our lengthy conversations with our oncologist. These are the types of questions I ask.
Dr: I suggest your regimen to include drug X, which is a steroid, so expect weight gain.
Patient: Um okay...
Patient: Well, how much weight are we looking at? What are my options if my weight increases? Does this possibly lead me toward problems with other diseases, like cardiovascular disease?
Be your own advocate
Stick with it and demand direction, whether asking for a social worker or dietician to direct you to some information. If all else fails, reaching out and having a straight conversation with your oncologist or family practitioner for guidance about a weight management program. As for the conversation with your doctor, you can also ask if your dosage can be adjusted if your weight changes are becoming a problem.
As for myself, I have changed my diet slightly, and have built-in a consistent workout routine. As I do have after-effects of residual meds in my system and a slower metabolism, this is not a quick fix, but it’s fixable. My routine is limiting the number of processed foods. I’ve definitely made visible food changes and just try to be mindful.
The time to fight is now, with integrity, grace, hope, and a smile….when you feel like it
Editor's Note: We suggest consulting with a healthcare professional before starting any new diets or exercise regimens.
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