Finding the Right Healthcare Team

By Editorial Team

3 min read

Last updated: April 2023

Finding the right doctor, provider, or healthcare team can be a challenge, especially when dealing with a serious condition, like a blood cancer. Whether you’re looking for a general physician to assist with your well-checks, or a specialist to assist with your blood cancer, there are many considerations to be made. Insurance status, location, experiencing or training of the provider, overall compatibility, and more, are all factors that may be taken into account when finding the right fit between you and your healthcare team. An ideal healthcare provider is one who makes you feel safe, valued, listened to, and like you are an active part of treatment decision making and care.

How do I find a provider?

Finding and trying out new providers are often the first steps needed in your journey to find the right team for you. A good place to start is with your family doctor. If you have a general physician that you regularly see, they may know of specialists or other providers in the area who focus on treating various blood cancers. They may be able to put in a referral directly to this new physician, allowing you to schedule an appointment in a timely manner. If you do not see a primary care provider regularly, checking in with the physician, hospital, or other entity in which you received your diagnosis may also be helpful in receiving a referral.

However, if you are unhappy with the physician you are referred to, or do not have a means of getting a referral, it may be necessary to do some research on physicians, specifically hematologist-oncologists, in your area. If there is a university nearby with a large hospital system, this may be a good place to start your search. If you do not have a facility like this nearby, organizations such as the American Society of Hematology or U.S. News and World Report have online search tools to find a physician in your area.^1,2 After you find a physician that you’re interested in seeing, calling their practice to find out what insurance carriers they take and what their availability is for new patients is a great next step.

What is a hematologist-oncologist?

A hematologist-oncologist is the type of provider most commonly seen by individuals with blood cancer. This kind of physician has training in the study of the blood (hematology) and the study of cancer (oncology). In addition to being able to treat various types of blood cancer, these providers can also treat iron-deficiency anemia, hemophilia (a disorder in which the blood doesn’t clot normally), sickle-cell disease, and more. Depending on your personal situation and relationship with your hematologist-oncologist, these physicians may sometimes take on the role of a primary care provider as well.

What do others in the blood cancer community think?

In order to find out more about various issues within the blood cancer community, including opinions on finding the right healthcare team, we conducted the 2018 Blood Cancer In America survey. The survey received over 2,500 responses from nearly 2,000 individuals who have received a blood cancer diagnosis or who are in the process of being diagnosed, as well as over 600 caregivers to these individuals. The survey contained over 100 questions related to quality of life, ongoing symptoms, additional health conditions, treatments, and more, leading to results that provided an interesting and in-depth picture of what life with blood cancer is like.

Overall, many respondents reported high satisfaction and comfort levels with their healthcare providers (especially with their hematologist-oncologist), however, there were some commonly reported concerns. When it comes to their negative opinions of their healthcare providers, many respondents reported frustrations with having limited conversations about treatment options and their potential side effects. Another common frustration reported by survey respondents was that their provider left the practice or that they had to change providers for another unexpected reason. Other healthcare provider-related concerns reported by respondents included:

Lack of communication between healthcare providers
Differing opinions amongst healthcare providers
Lack of empathy for feelings or concerns (lack of emotional care)
Financial burden of care costs
Long wait times for test results
Lack of discussion on long-term prognosis or side effects

If you (or a loved one) feel unsupported or unvalued by your healthcare provider, seeking a second opinion or trying out a new provider is always a potential option to ensure you receive the care you deserve.

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Daniel Malito Moderator
God, is there anything more important than finding the right doctor and/or team for you? Nothing that I can think of. Maybe football (not the Raiders). A doctor you trust and that keeps up with the latest cutting edge treatments and info is a rare commodity, but worth its weight in gold once found. I urge everyone who is still looking to read this article and take up the info contained within. DPM
Yolanda Brunson-Sarrabo Moderator
TOTALLY AGREE! If I didn't do my due diligence in finding a second opinion- Only God knows how my story would be right now. I was first given some an unsettling opinion on how to go about treatment, when in fact I didn't need to start treatment until about 5 years later. I also was informed it was multiple myeloma, when in fact I had asymptomatic myeloma. It makes a huge difference how you and your team move about when everyone is on the same page in your diagnosis.
ocean Member
I had a difficult time when it came to getting the the care I needed for ALL I was in 3 hospitals the first one was a local hospital spent 4 days there till they found out I had ALL I was rushed there from a doctors office because of severe bleeding and low blood counts then I was taken to another hospital about an hour away or so and it was a huge hospital there they lolly gaged and moved at at a snails pace they did a bone marrow biopsy and all so it was the worst hospital ever they were so rude and no communication and the care was horrible so I left there and found another doctor 2 and a half hours away but he was good explained everything good bedside manner and the staff were real nice was treated well and my ALL was under control then the doctor leaves the practice in mist of treatment and I get another doctor and he is good thank god but it was a bit of a concern when this happened so yeah it’s sooooo hard to find a good doctor nowadays it really is
Dennis Golden Moderator
I was quite fortunate (strange to say) when I found myself facing a possible blood-cancer or pancreatic cancer diagnosis. I am a 9 year prostate cancer (Pca)survivor (2x) and decided several years ago to volunteer at 2 local hospitals to help men facing the emotional and physical challenges men and their partners can face. Area hospitals here have put in place teams of dedicated folks known as nurse navigators whose job is to help patients through the maze of hospital bureaucracy, pit bull front office types, dead ends and more. In short they know how to cut through the BS. I called one of the navigators and explained my issue. Within a half hour I had an confirmed appointment with the top Blood-Cancer guy in the area. Like many things in life - it is often not what you know but who you know. I will say this ...volunteering at a hospital can open up a lot of connections and pathways that most folks are not aware of. I recommend volunteering both for the networking opportunities it offers and for the mental healing that comes to each of us who reach out to help others. Dennis (Blood-Cancer.com TEAM)