How Blood Cancer Changed Me

My diagnosis of MDS was not a complete shock to me. As a retired RN I understand with the symptoms I was experiencing I either had MDS or multiple myeloma. I, of course, had normal anxiety about my subtype which decreased once I found out I had Del5q. I had to alter some lifestyle changes due to fatigue, weakness, etc., until I was placed on Revlimid. I had been transfusion-dependent prior so I was able to return to reasonably normal life activity.

I had to deal with side effects of drugs which did create issues with GI distress and change in the taste of many foods. Overall I was doing well. Now my life has changed dramatically again as I now have gene mutations that are significant - I'm having to alter my lifestyle as again my counts are again decreasing- anemia has returned, my immune system is very low, my energy level has dropped dramatically, limitations on contact with others as to large crowds( missed some concerts I wanted to attend) and overall naps are frequent again.

I am awaiting clinical trial admittance so I'm not sure what I'll be facing with those drugs. My family, especially my great nieces and great nephews, is my greatest joy, along with my church family. Happy to be able to appreciate every day I'm given.

-Diana Blair

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Blood-Cancer.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.