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  • Receiving the diagnosis of blood cancer can be one of the most difficult things one will face. Now that you or someone you care for has been diagnosed, what advice would you give to others who are going through this new experience?

    I was 15 when being diagnosed with AML and all I remember is wanting to play sports, hang out with my friends, and be socially accepted. As a young adult experiencing cancer what were/are some of your main focus’ in life during this time? And what things in your life influence(d) you to reflect back on your experience with cancer?

    Welcome to the Lymphoma discussion board. Here you can chat about general topics such as symptoms, lifestyle, diet, and more! Read our Community Rules here

    We are incredibly saddened to share that team member Cherie Rineker passed away on October 23, 2019. Cherie had been living with multiple myeloma since 2012. She will be remembered, and missed, by all who knew her, and her tireless advocacy work will have a continuing impact on the community. Read more about Cherie here and join us in remembering her by sharing any memories below.

    November is National Family Caregivers Month and we want to honor the caregivers of our community who make sacrifices to provide their loved ones and patients with love and support around the clock. What has your caregiver done to help most during your experience with blood cancer? Caregivers, what have you learned most from your loved one living with blood cancer?

    Got through my last radiation treatment to be told we cannot do anymore. My oncologist says I am way to sick for any treatment and hugged me 4 times before I left his office. As per hospice MD I’ve been given weeks to live not months. My pain is being managed well and yes I am a bumpy lumpy girl, but really? I have had 5.5 wonderful years , so I achieved my goal. Guess I just can’t believe it.

    Welcome to the Leukemia discussion board. Here you can chat about general topics such as symptoms, lifestyle, diet, and more! Read our Community Rules here

    As you may have heard, May is Mental Health Awareness Month. As people affected by blood cancer, we are constantly taking care of our bodies and it is important that we also take care of our minds. So let's talk about it!
    • -Do you set aside time to take care of your mental health?
    • -What has been helpful to you?
    • -Why is mental health awareness important to you?
    • -Never thought about it but want to learn more? What questions do you have?

    Finding a doctor that is an expert in treating your kind of cancer is essential, but that doctor also needs to be a match for your personality too. How did you go about finding the doctor that was right for you?

    When you are feeling like a couch potato or just need a break, do you prefer watching a show or reading a book? Tell us about your favorites!

    Have you ever met your Stem Cell Transplant Donor, or the person your stem cells were donated to? What was that experience like? Share your stories!

    I am interested how this leaves people feeling. I have read all I can and there seems to be some conflicts. Feeling lethargy, not able to do what they want, WBC count down, love life postphoned, less resistance to infection. I would like to hear some first person accounts of their experience.

    We have heard from many community members about their experiences prepping for, going through, and recovering from a stem cell transplant(SCT) - sometimes multiple transplants. Other members are just learning that a SCT may be the best hope for remission but have no idea what to expect, or how to physically or mentally prepare for such a major procedure.
    • Do you fall into either of these groups?
    • Do you have any question about an upcoming SCT?
    • Do you have any valuable experiences to share with others about your transplant?
    Let's talk about it!

    I have had many discussions about CBD legality for cancer patients in various support groups. To help help cancer patients in SD understand the legality of CBD in this state, I did the follow post on my cancer blog today: Status of cannabidiol for cancer patients in SD

    I had a bone marrow transplant in September 2015. Now I have graft vs host and a lot of medicine and blood work every 2-3 weeks. Now my liver blood count is high. Anyone ever had this or know about this?

    For some, starting conversations regarding end of life care can be very difficult. When is the right time to start that conversation? Who do we start the conversation with? What are the next steps after a conversation? Hearing about others experience with these talks can be super helpful. Share your thoughts or ask a question or two below!

    I deal with my team with a smile (when I feel like it), Greetings, Small talk and a warning to watch that needle! :)

    While caring for someone with a blood cancer diagnosis, it can be difficult finding time and energy to care for yourself. What are some things you do to care for yourself, destress, and have fun?

    Welcome to the Multiple Myeloma discussion board. Here you can chat about general topics such as symptoms, lifestyle, diet, and more! Read our Community Rules here
Viewing 20 topics - 1 through 20 (of 24 total)