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Shocked by Diagnosis

In February I began feeling what I believed to be a pulled muscle which only worsened. Eventually I saw my GP followed by a visit to an orthopedic specialist and I was diagnosed with arthritis in my hip and lower back. Since the pain continued to worsen I had blood work done and had an MRI of my hip and spine. The blood work was basically clean however the MRI had an anomalous signal in the bone marrow.

Based on the MRI I was referred to a hematologist/oncologist who had a bone marrow biopsy done. The biopsy resulted in a diagnosis of Lambda Light Chain Multiple Myeloma with 90% of my marrow containing the cancerous Plasma cells. The next step was to put together a great team of doctors to help me kick the crap out of this cancer. The team is in place with a world leader in research and successful treatment of this disease, Dr Sundar Jagannath at Mt. Sinai in NYC and a fantastic hematologist / oncologist,  Dr Thomas Blom in Princeton who has been helping others beat this for years.
So in a little more than 3 months I have gone from an assumed pulled muscle to treatment of this aggressive cancer.

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Comments

  • Ann Harper moderator
    2 months ago

    Recently l got a bad cold, which turned to bronchitis, then pneumonia. I pulled a muscle in my rib which is starting to get better, but its definitely scary.

  • Ann Harper moderator
    3 months ago

    That’s great that you have a great team of doctors. That’s the first step in beating this. How are you doing now? Good luck to you and please keep us informed.

  • Anthony Carrone moderator
    10 months ago

    Hi @paddys – Thank you so much for sharing your story. I am so sorry to hear about your diagnosis. I can’t imagine the shock of assuming it was a pulled muscle and then finding out the truth. I’m so glad to hear you have had a good experience with your doctor. How have you been feeling recently? Sending positive vibes, Anthony (Team Member)

  • paddyS author
    10 months ago

    Hi Anthony – Thanks for the support. I have completed 6 weeks of treatment with Darzalex, Valcade & Dexamethasone. So far this seems to be working I have had minimal symptoms for the past 10 days and bone pain has virtually disapeared. Blood work showed a significant reduction in Light Chain after the first week but has plateaued since.

  • Ann Harper moderator
    3 months ago

    I’m glad things are moving in the right direction. How are you doing now?

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