Marcia’s Story

After a terrible migraine and nausea, I went to the emergency room. After scans and blood work, I was diagnosed with polycythemia vera. Actually, it was May 23, 2017… I’ll never forget it. My two sons live in Orlando, my daughter lives close but cannot accept it and will never discuss my situation and illness.

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View Comments (2)
  • Yolanda Brunson-Sarrabo moderator
    1 month ago

    Hi @marcia
    It can be so difficult facing situations like this, and once “that” anniversary approaches the ordeal doesn’t leave us. I say all that to say, it does get better. It’s a new walk and a new journey towards the future. You’re still among your family and friends, so embracing your presence in the moment may be how you need to move forward. As this is difficult for you, your family hold onto the grief of what the future holds. You’re not alone, I wish you the best as you move forward. As a survivor, we look forward to even more anniversaries yet to come.

  • Anthony Carrone moderator
    1 month ago

    Hey @Marcia, I’m sure that date is unforgettable. One of our advocates wrote an article about how she confronts her anniversary. Here is the link if you’re interested: I’m sorry that you are not able to communicate with your children about your illness. I know that conversation can be difficult on both sides. Please know we are here for you. Many people here have been through similar situations and really understand how you feel. You can always reach out to me if you need to chat or have any questions! Thanks for sharing your story – I’m sure you have helped others feel less alone. Sincerely, Anthony (Team Member)

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