My Journey in Progress

Hi friends. I was diagnosed with multiple myeloma in December 2015. I underwent 27 treatments of radiation followed by four full rounds of chemo. I am still receiving maintenance chemotherapy every two weeks had my last treatment yesterday. My diagnosis still reads multiple myeloma not having achieved remission. One of my biggest problems now is pain. Severe back pain. I am working with primary care as well as oncology and pain management.

Still trying to stay positive and having this venue to share what I’m going through with people that get it really helps. It’s really exhausting mentally, physically, and financially. I will fight with all I have as long as I have something to fight with. Thanks for listening.
Louise

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Comments

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  • Ann Harper moderator
    4 weeks ago

    Trying to have a positive attitude is so important. I’m sorry you are going through so much, but I’m glad you getting support from your doctors. I wish you the best and will say a prayer that your pain subsides. Good luck.

  • Crystal Harper moderator
    6 months ago

    Louise, you have such an amazing attitude. I know what you’re going through must be so difficult, but despite that you seem to have a positive outlook on life and that is an amazing quality. I’m so sorry you’re going through this and I hope you find a solution to make it more bearable. Wishing you all the best and please know that there are so many people here to support you!

  • Crystal Harper moderator
    6 months ago

    Louise, you have such an amazing attitude. I know what you’re going through must be so difficult, but despite that you seem to have a positive outlook on life and that is an amazing quality. I’m sure you’re oncology team is doing a great job with pointing you in the right direction for pain management, but I wanted to pass on this article that I read and found interesting about different pain management techniques. I’m so sorry you’re going through this and I hope you find a solution to make it more bearable. Wishing you all the best!!
    https://blood-cancer.com/coping/pain-management/

  • Yolanda Brunson-Sarrabo moderator
    6 months ago

    Hi Louise, Thank you for checking in. I’m sorry your treatment didn’t put you to complete remission, as you would have liked it. Don’t be discouraged and I know that’s easily said than done, continue your discussions with your doctor with the next steps to move forward. I started my treatment about that time as well. My diagnosis is now at remission. I too have pain targeting my hip area. I try to build moderate fitness to help me with discomfort. When you have a chance check out our pain management link, perhaps it can better assist you. https://blood-cancer.com/coping/pain-management/

    I agree with you sis …continue to stir that fight in you. Continue to live life to the best of your ability, and continue to stay encouraged. Thank you for sharing.
    Best Regards

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