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Frustrated

Hi, I am Debbie, 61yrs old. Diagnosed with follicular lymphoma about 1 1/2 years ago. After 1 round of giziva, I had to stop because of my low WBC count. Luckily, after the 6 weeks of giziva and benomustine I was in remission. It’s time now, after 10 months, to go for a pet scan to see “what up”. Not much I hope.

I feel each day is not the same as it was before being diagnosed with cancer. I am constantly thinking about having to start chemo and all the side effects that can occur. My pet scan is next Thursday. My follow-up visit after the scan is 9 weeks later.

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Comments

  • Outlander
    2 weeks ago

    I just joined and saw your post…let us know how your scan goes. I have the same type of cancer and will go for my scan next month. I hope yours goes well.

  • laurendd author
    2 weeks ago

    Hi, my pet scan was good. No chemo needed. Tell me a bit about yourself

  • Crystal Harper moderator
    2 months ago

    I would get so frustrated with how much different my life was becoming after being diagnosed with cancer as well. Cancer and treatment changes so much and what helped me deal with those emotions was finally telling myself that cancer is my “new normal.” It wasn’t fair for me to compare myself prior to my diagnosis to my current situation because it’s so very different. I had to start over in a sense and let go of all my old expectations of myself. I hope you find some peace with your new normal and I’m wishing you all the best as you head in for your next scan.

  • Ann Harper moderator
    2 months ago

    Stress is so unhealthy, but I totally understand. When I start to get nervous about scans I think that it is, what it is. There is nothing I can do, so I try to keep busy and not think about it. Good luck next week. I will say a prayer for a great outcome!

  • Yolanda Brunson-Sarrabo moderator
    2 months ago

    Thank you for sharing your story. I know it’s not easy, and yes life may never be the same, but moving forward and still living a full and productive life with love, fun is key. Wishing you the best on your follow-up. Best!

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