Mantle Cell Lymphoma Stage 4

I was diagnosed with this rare type of NHL in Oct 2013. I chose to do nothing. From everything I read, MCL becomes chemoresistant and remission is short lived. It was not worth it for me to go through chemo and a BMT to just have it return.

In 2018, I did do radiation to my eyes, parotid glands, and chest. I had tumors wrapped around the aorta of my heart. I also had a permanent pleurx tube placed to drain my right lung.

Faceing cancer on my own terms

I have pain but can say hospice has done a great job of managing my pain. I am at peace with my decision not to treat and have no regrets. I have traveled and had good quality time with my family.

I have not let my cancer dictate my life but rather faced cancer on my own terms. I am thankful for every day God gives me. I am so grateful to have found this forum💚

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Blood-Cancer.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (2)
  • meag
    5 days ago

    Interesting…were you diagnosed with maaltoma by any chance? I was diagnosed in Sept and given option to “wait and watch”. The hard part is adjusting to idea of lung and bone marrow cancer and not acting on it. Didn’t realize chemo becomes less effective.

  • CindyC moderator
    2 weeks ago

    How we chose to treat or not treat our cancer is a personal decision. I am glad you are at peace. Palliative care and hospice are very helpful in dealing with pain and providing emotional support. Wishing you peace and comfort.

  • Poll