Mixed Feelings About a Transplant Anniversary
It occurred to me that my birthday might be coming up, but I wasn’t sure. I wish I hadn’t misplaced my original blue spiral notebook in which I had written important dates. I tried to look it up in Patient Gateway but couldn’t find it. I could have asked my nurse practitioner at Dana-Farber to check, but I’m taking a leap and saying that I think Sept. 18th is one of my birthdays.
OK, so, maybe you know what I’m talking about or maybe you think I’m unhinged.
Mixed feelings about September 18th
I’m pretty sure that Sept. 18th is the 16th anniversary of my first bone marrow transplant. It was my autologous transplant, the one using my own stem cells. It kept me in remission for almost four years. So it’s hard to say if it worked or it didn’t work. It worked because I got that time in remission, without the complications that I now have after my three allogeneic transplants. But it didn’t work because I relapsed. So I have mixed feelings about the date.
The ABCs of SCT and BMT
Readers accustomed to seeing the procedure called a stem cell transplant might notice that I called it a bone marrow transplant. The terms are interchangeable, with “stem cell” of late having replaced “bone marrow” because it’s more in synch with the way recipients get their new cells. But I was a bone marrow transplant patient with the notice on my hospital room door to prove it: BMT.
It made me think of the name of one of the subway lines – BMT – in my hometown, Manhattan. I mostly took the Lexington Avenue IRT. IRT was short for Interborough Rapid Transit Company, one of two private companies that started the city’s subway system in the early 1900s. The other was the Brooklyn-Manhattan Transit Corporation: BMT. Numbers phased in and those abbreviations phased out, so that by the time my son had moved to New York and told me he was taking the Local 6 train, I at first had no idea that he was talking about my old Lexington Avenue IRT.1
When I started seeing the abbreviation SCT, for stem cell transplant, it didn’t have quite the same ring, but now I am used to it.
Looking back on autologous and allogeneic transplant decisions
After I relapsed, I wondered why I hadn’t gone straight to an “allo” (short for allogeneic) instead of getting an “auto,” short for autologous. I didn’t understand at first that auto transplants are restorative but not curative; they don’t offer the graft vs. leukemia effect of guarding against leukemia intruders.
My social worker told me recently that at least at Dana-Farber, most patients now go straight to the allos. When I relapsed, my doctor said he still would have done the same thing because I got those good years without complications. Even with the chronic conditions, I do pretty well. The neuropathy in my feet acted up with the onset of cooler weather, but still, the other day I walked 12,836 steps (5.6 miles) at The Eastern States Exposition, our version of a state fair. I didn’t get sick from all the stuff I ate, and I held up well enough so that the next day I was able to get up early for tennis, where I channeled my father to hit some great shots at the net.
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