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A Moment to Reflect

A Moment to Reflect

As we begin the new year, we want to take a moment to reflect and share some highlights from our community in 2018. There have been raw moments of the painful truth, encouraging words of faith and determination, and reminders to stay positive through it all.

We have come together as one community of people with many diagnoses who truly understand each other’s experience. We are inspired by your willingness to share experiences and provide support to those in need. Thank you.

The painful truth

We’ve had some difficult conversations about the harsh realities of blood cancer:

“I have multiple myeloma and have been through induction chemo, radiation, stem cell transplant, nausea, excruciating bone pain. But nothing is as distressing to me as fatigue and this is just on maintenance chemo.”

“For me, there is another layer: depression. Some days are almost impossible, literally.”

“I hate not being able to have fun with my wife like we use to. She does so many things for me and I feel guilty.”

“Without the support of my wife and friends, life with leukemia would be very very hard”

“There is no good cancer! Cancer sucks. Period”

“Totally understand this, my husband has myeloma, haven’t shared a kiss for a year for fear of him getting sick. Lifestyle changes, not easy.”

“My biggest difficulty is not being able to work. Either I’m sick, exhausted or at chemo treatment.”

Bob McEachern: It’s OK to Have a Bad Day
Jim Smith: Fear and Worry
Community Story: Anxiety: Is CLL the Culprit?

Words of faith and determination

You’ve shared words of faith, encouragement, and support to others who are dealing with this disease:

“Frustrating yes indeed but I balance this feeling with gratitude for still being alive.”

“Dear Lord, please protect and help your precious children recover from this terrible disease and sustain the treatments.”

“I lost my husband 20 years ago to this cancer. My love and prayers surround each of you. What helped us was our faith in God and our sense of humor.”

“Praying for all! My sister has blood cancer and is back home after a stem cell transplant. Faith keeps us going and we can feel the prayers of others!”

Carole McCue: How Spirituality Helped Me Cope with My Cancer Diagnosis
Sierra Asplundh: Yoga…And Then Some
Community Story: Multiple Myeloma and Faith

Finding reasons to stay positive

It’s often hard to find a reason to smile when your life has been affected by any cancer, but you’ve found reasons to smile and laugh despite blood cancer:

“The way you told that had me laughing so hard I cried! Will definitely share with others! 😂 Laughter is good medicine. We MUST, if we can, find humor in the difficult times! Thank you! 💛”

“First time in two years I didn’t spend it having chemo on my birthday 😁 Still just taking one day at a time.”

“Always be positive, know that prayer works, and look for the silver linings. With chemo, I kind of loved not having to shave my legs for six months. And I have saved a ton of money by not needing haircuts or hair color. 😊”

“Cancer treatment was a time of reflection. Cancer taught me to appreciate life.”

“When I had a relapse, I had a moment of shaking my fist at God! Then I accepted that I had choices. I decided to fight, and the positive attitude is so important!”

Carole McCure: Staying Positive in Spite of a Cancer Diagnosis
Matt Goldman: Throwing Caution to the Wind
Community Story: APL Does Not Define Me

In solidarity

No matter where you are in your fight against blood cancer, or which type of blood cancer you were diagnosed with, you’ve stood together:

“I am actually very much enjoying this site. Sharing my situation, plus seeing I am not alone, and experiencing what other people are also going through… Well, it helps.”

“When I get treatment, there is a large waiting room filled with people who have lymphoma – all different stages. But we are all in the same boat. In a strange way, it is comforting”

“I was not brave enough to participate in a clinical trial, but I respect those that are. We owe you a debt of gratitude”

“I have CLL and I intend to live a positive life also. Thank you for your insight and positive attitude.”

“I am grateful for this group! I am here to offer my support in any way that I can.”

“I was diagnosed last December with stage IV lymphoma. I’ve been financially devastating as well. I have a pretty good feel for what you are going through. I think this is true for many other people as well. I try to just take one day at a time. It is too overwhelming to think beyond that. I will surely keep you in my prayers.”

Racheli Alkobey: Awareness for All Cancers
Community Discussion: SCTtalk: A Stem Cell Transplant Discussion
Community Story: Perhaps We Can Help Each Other

Jumping into 2019

Our community will continue to grow in 2019. We will continue to honor the memory of those who are no longer with us, celebrate milestones of those in treatment, rejoice with those who reach remission and lift each other up when we need it most.

Here are some ways you can connect and interact with each other:

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Blood-Cancer.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • meag
    6 months ago

    This site has been a life saver for me. When I don’t want to burden my husband, or don’t feel he will understand mostly the fear or frustration I’m feeling I have a place to go-people who get it!

  • Yolanda Brunson-Sarrabo moderator
    6 months ago

    Hello @meag We’re so happy you can come here as we all relate to our new journey, and hope to cope. Have a great day! (smile)

  • Ann Harper moderator
    6 months ago

    I love the quote about being greatful.

  • Ann Harper moderator
    6 months ago

    There is so much this site offers and so much that has been shared. Thank you for letting me be part of this site. I especially liked – Reasons to Stay Positive.

  • bluchs
    6 months ago

    WOW!
    Thank You for this post!
    I actually had tears in my eyes while reading it.
    This is a harsh reality.
    Fatigue, O My God, I don’t even know how to explain it to someone, who does not have this cancer. They simply can not understand what we go through.
    Depression, every single day, it can be overwhelming!
    Sometimes, it is impossible to cope with, Literally.
    Yes Cancer does Suck, and there is no good cancer.
    Financial Devastation, is actually a bit of an understatement. I spent a lifetime, saving and preparing for retirement and now it’s all gone.
    YES, I am so grateful to have joined this group.
    Solidarity, absolutely.
    Prayers, Do Work, as we all Pray for one another, we help one another, and that feels great.
    Thank You to everyone here, we are a team for our own futures.
    We Are Not Alone!

  • Yolanda Brunson-Sarrabo moderator
    6 months ago

    @bluchs Yes, my friend there is strong solidarity here. Cheers to a continued fight for wellness. Best!

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