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Feeling tired no energy.
Hey there, Glad you liked the post. I also had IV nutrition at one point and also like you, more than one transplant. I was so weak that I couldn’t get out of bed, but now I run around like a crazy person. Obviously I don’t know your situation, but I hope you don’t give up on wanting to go back to your activities. Just take baby steps. If you copy…
YolandaBrunson-Sarrabo commented on the post, Why I Fired My Oncologist and How I Hired Another (Part I) 1 day, 14 hours ago
Sad isn’t it? Empathy is something many doctors need a refresher course in how this works, in working with patients.
Matt, this was such an informative piece! I don’t think many know that there’s options out there. The problem with options sometimes is you have to do the work to see what can help your situation. Thanks for doing the homework. Best!
I couldn’t agree with you more. I have a friend who always texts me a note of encouragement when I stepped in treatment, or when I have a follow-up. It means the world.
Going through the steps of all of this can be a huge adjustment, and with that said any small steps to improve your day to day activities is good. You will find your new activity (or the same one) that provides you with that freedom to move and jump as you once were able to. You got this!
Great idea! Thanks for sharing that. Best
That is great you’ve found a way to cope with the process of this procedure. Everyone has there own way getting through this. The last one completed they provided me with music but that didn’t make much difference in my case (smile).
Good piece! I played tennis and golf in June 2019 (at 170 lbs.) knowing that because of my upcoming second stem cell transplant, I might not be back out for awhile, if ever. I am now at 130 lbs., utilizing IV nutrition to try to rebuild my body, which is pretty devastated by the transplant and various complications. I mourn the losses and try to…
I think family, friends, and your team are so important. You need that during treatments. Good luck.
I think family, friends, and your team are so important
I take in my Bose speaker and ask the staff for music requests. The music helps everyone, especially me.
Thanks for the advice and for sharing your learning experience. I’m 61 and trying to get disability but apparently not every state thinks having to deal with MM cancer is a qualification, so I’m not sure I’ll ever get there. In the meantime it is good to know what I should start looking into concerning how to get the best coverage for my future…
Daniel, the Star Wars cantina had better music than my treatment room. Otherwise, yeah, it wasn’t as bad as I feared.
Good advice. I went through the same drill: mandatory Medicare for me at 62 (also did standard with Medi-Gap and separate drug plan) and having to get wife standard coverage. Both took days and days of research and much head scratching. I have a law degree and am used to complex materials. I wonder how people get through it.
@bobtalisker When I first saw that room and everyone all masked up, it struck fear into my heart as well. Plus the waiting room was like a scene from the Star Wars cantina, it was awful. It turned out, though, as it often does, that my assumptions were wrong and it was pretty not bad. 🙂 Keep on keepin’ on, DPM
@radiant-racheli The only good cancer is the one that comes with a horoscope, and even that’s not so great all the time (reserved and introverted? Yeah, don’t think so BuzzFeed quiz). It’s always the second question they ask though. Great vid as usual. Keep on keepin’ on, DPM