Polycythemia VeraHi. I was diagnosed with PV in 2017. I am on Hydroxvurea. 500 MG, 7 days per week. I have frequent phlebotomies but after the last phlebotomy, I got really...Reactions 0 reactions Comments1 repliesDiagnosisSymptoms
What is or was your diagnosis?When finding out you were diagnosed with cancer, what is or was your complete diagnosis called?...Reactions 0 reactions Comments13 repliesDiagnosisAwareness
Seeking 2nd OpinionsEver wondered about the best tactics in trying to have another pair of eyes on your health? Do you feel nervous going about this without hurting the other doctor's feelings?...Reactions 0 reactions Comments4 repliesTips & AdviceNewly DiagnosedDiagnosis
Fear of Second CancerI had a scare a few weeks back that luckily turned out to be not what we thought. I have to admit the fear of second cancer struck me off...Reactions 0 reactions Comments40 repliesDiagnosisTips & AdviceCoping
FAILURE OF INITIAL TKI IN TREATING CMLHello, What symptoms will one experience if their TKI(s) begin to or have failed? Will they be the same as before diagnosis?...Reactions 0 reactions Comments1 repliesDiagnosis
FeaturedWhat other conditions in addition to blood cancer are you living with?Are you living with any additional conditions in addition to blood cancer? Share with us below ⬇️...Reactions 0 reactions Comments22 repliesDiagnosis
When first diagnosedDid anyone have absolutely no reaction when told you have "cancer" ... Ok ... "You have leukemia" ... ok. I wasn't scared, shocked, or upset. Have had to educate myself...Reactions 0 reactions Comments41 repliesDiagnosis
3 Blood Diseases (Cancer)I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda Maryland. Ohio State University James Cancer doesn’t know...Reactions 0 reactions Comments8 repliesDiagnosis
Sky high Platelets and Ferritin with MDSHi there, I was diagnosed with MDS two years ago. Yesterday my bloodwork showed very high Platelets (1,070) and Ferritin (400). My Doctor is confused and said I'm a "puzzle"...Reactions 0 reactions Comments11 repliesDiagnosis
Hairy Cell LeukemiaHi All! Has anyone gone through treatment for hairy cell leukemia?...Reactions 0 reactions Comments4 repliesDiagnosisLeukemia