I have Essential Thrombocythemia.I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...Reactions 0 reactions Comments2 repliesDiagnosis
AML with flt-3If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...Reactions 0 reactions Comments0 repliesDiagnosisCoping
Wins and InterruptionsYou never know... sometimes it flows the way it's supposed to and other times, there are a few hiccups between the stops. What was 1 win towards your health in...Reactions 0 reactions Comments5 repliesCopingDiagnosisTips & Advice
Coping Strategies and Lifestyle Changes: Sharing Experiences and SupportThis space serves as a supportive community where we can come together to share our experiences, insights, and challenges related to blood cancer. Whether you have been recently diagnosed or...Reactions 0 reactions Comments4 repliesCopingTips & AdviceDiagnosis
DO You have trouble with people saying 'OMG, YOU DONT LOOK LIKE YOU HAVE CANCER"I have been diagnosed with Leukemia since 2012. It was REALLY hard at the beginning, mental, physically, emotionally. I am still on medication for it. When i tell people ...Reactions 0 reactions Comments3 repliesCopingDiagnosisLeukemia
How I was diagnosed with cancer….I noticed that there is a pattern and usually it’s a strange pattern of how someone finds out that they’re diagnosed with cancer. I definitely had my own strange symptoms...Reactions 0 reactions Comments34 repliesDiagnosisAwareness
I Need Help/Does anyone have expierence with MPAL?Hello dear members, dear parents, I feel totally helpless. I hope to find help here. My 4 year old son Mica was diagnosed with leukemia (AML) in December 2021. He...Reactions 0 reactions Comments2 repliesLeukemiaDiagnosis
Vidaza treatment vs bone marrow transplant I’m 56y/o male diagnosed with MDS this past April. I just finished my 3rd round treatment.I’m considered high risk. The treatment I’m doing now is Vidaza. My Dr. said it’s...Reactions 0 reactions Comments3 repliesDiagnosis
Do you know other people who share your same blood cancer diagnosis?There are some rare blood cancers, and many of us don't always meet others who share our same diagnosis. How many people do you know with your same diagnosis? And...Reactions 0 reactions Comments0 repliesDiagnosisIntimacy & RelationshipsCoping
What about when you are ghosted by the person with Cancer?I have a newish friendship of 2 months with a man. We just clicked on a natural deeper connection and felt like we had known each other for years. We...Reactions 0 reactions Comments3 repliesFriends & FamilyCopingDiagnosis