T cell PLL Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...Reactions 0 reactions Comments6 repliesDiagnosisCoping
What is ONE Thing Gets You Through The Challenges Every Day?Blood-Cancer comes with a lot of challenges. I have found that focusing on one thing helps me cope on a daily basis. For me that one thing is being in...Reactions 0 reactions Comments0 repliesCoping
Block or CopeA diagnosis is some serious business and a lot to get through in processing. How do or have you processed it all and everything that is entailed? Have you blocked...Reactions 0 reactions Comments0 repliesDiagnosisNewly DiagnosedCoping
Nk T Cell Non Hodgkins Lymphoma unlikely patientHi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...Reactions 0 reactions Comments2 repliesCopingDiagnosisDepression
FeaturedConnect, Support, and Share Experiences with fellow MDS WarriorsLiving with Myelodysplastic Syndromes can be challenging, but you're not alone on this journey. We're here to listen and support each other through the ups and downs of living with...Reactions 0 reactions Comments35 repliesCopingTips & AdviceMDS
Financial assistance I'm back for more advice.. I'm in day 72 after my auto stem cell procedure. In my work field (working with individuals with idd) I'm not sure when I can...Reactions 0 reactions Comments3 repliesCopingCostAwareness
Fulfilling A Bucket ListWhat is that number one on your bucket list of things to do and see? I've been around but Brazil was a must see on my list to visit before...Reactions 0 reactions Comments11 repliesTravelCoping
RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions 0 reactions Comments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions 0 reactions Comments3 repliesCopingResearch & Clinical TrialsTreatment
Your Fitness Go-To...Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...Reactions 0 reactions Comments6 repliesCopingExerciseTips & Advice